We are developing guidelines for the evaluation of blood vessel malformations in the lungs (pulmonary arteriovenous malformations) in children with HHT. This innovative approach will replace CT scans, avoiding the successive and often unnecessary radiation exposure for children who have no symptoms.
We are also developing guidelines for the diagnosis and treatment of malformed blood vessels in the brain (cerebral arteriovenous malformations), with the goal of that they will be universally adopted into medical practice. We are interested in developing liver transplant guidelines for patients with HHT in heart failure in the United States. We are continuously analyzing existing data and conducting evidence based research to prove new treatment methods that can positively impact the lives of patients in our care.