Kidney Health in Kids and Teens with Congenital Heart Disease

CHICKADEE (“Congenital Heart Disease in Children: Kidney-Associated Conditions with Epidemiologic Endpoints”) is a multi-site study to understand if young people who have had heart surgery for congenital heart disease are more likely to develop high blood pressure or kidney problems.

Participation involves one 45-minute study visit in New Haven per year, for up to three years. During these visits, the study team will measure volunteers’ height, weight, and blood pressure, and collect information about their health history via a parent/guardian questionnaire. Participants will also contribute small blood and urine samples. An optional part of the study involves wearing a 24-hour blood pressure monitor at home for one day after the visit, which is considered the “gold standard” for getting an accurate measurement of blood pressure. All of these components are meant to provide a full picture of the participant’s kidney health, and the overall results of this study may be used to decide how kids born with congenital heart disease are treated in the future. Participants will receive a $25 gift card following each study visit