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Palliative Care in the Outpatient Setting

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  • 00:00 --> 00:02Funding for Yale Cancer Answers is
  • 00:02 --> 00:04provided by Smilow Cancer Hospital.
  • 00:06 --> 00:07Welcome to Yale Cancer
  • 00:07 --> 00:08Answers with your host
  • 00:08 --> 00:10Doctor Anees Chagpar. Yale Cancer
  • 00:10 --> 00:12Answers features the latest
  • 00:12 --> 00:14information on cancer care by
  • 00:14 --> 00:16welcoming oncologists and specialists
  • 00:16 --> 00:18who are on the forefront of the
  • 00:18 --> 00:20battle to fight cancer. This week,
  • 00:20 --> 00:21it's a conversation about palliative
  • 00:21 --> 00:23care with Doctor Dmitry Kozhevnikov.
  • 00:23 --> 00:25Doctor Kozhevnikov is an
  • 00:25 --> 00:28assistant professor at the Yale School
  • 00:28 --> 00:30of Medicine where Doctor Chagpar is
  • 00:30 --> 00:32a professor of surgical oncology.
  • 00:34 --> 00:36So Dimitry, maybe we can start off by
  • 00:36 --> 00:38you telling us a little bit more about
  • 00:38 --> 00:39yourself and what exactly you do.
  • 00:40 --> 00:42I'm an internist by training and a
  • 00:42 --> 00:44palliative care physician, and what
  • 00:44 --> 00:45this means is that after medical school,
  • 00:45 --> 00:48I chose to specialize in internal medicine,
  • 00:48 --> 00:51giving me the training to treat a
  • 00:51 --> 00:54variety of diseases that affect adults.
  • 00:54 --> 00:55After graduation.
  • 00:55 --> 00:57Internists can either pursue work
  • 00:57 --> 00:59in general medicine in the hospital
  • 00:59 --> 01:01or primary care practices,
  • 01:01 --> 01:03or they can continue their training by
  • 01:03 --> 01:05pursuing a fellowship and specialties.
  • 01:05 --> 01:08Some specialties like cardiology,
  • 01:08 --> 01:10infectious disease and many others.
  • 01:10 --> 01:13And I was fascinated by the idea of
  • 01:13 --> 01:15specialty palliative care training.
  • 01:15 --> 01:16Knowing that it would provide me
  • 01:16 --> 01:18with a unique skillset to help
  • 01:18 --> 01:20me provide patient centered,
  • 01:20 --> 01:22compassionate care to patients
  • 01:22 --> 01:23with serious illness.
  • 01:23 --> 01:25Palliative care is a type of
  • 01:25 --> 01:26specialized medical care for people
  • 01:26 --> 01:28living with a serious illness,
  • 01:28 --> 01:30and this type of care is focused
  • 01:30 --> 01:32on providing relief from the
  • 01:32 --> 01:33symptoms of the illness and also
  • 01:33 --> 01:35the stresses that come along with it,
  • 01:35 --> 01:37and the goal really is to
  • 01:37 --> 01:38help people live better.
  • 01:38 --> 01:40It's provided by a specially
  • 01:40 --> 01:42trained team of doctors,
  • 01:42 --> 01:44nurses and many other specialists
  • 01:44 --> 01:46who work together with the
  • 01:46 --> 01:47patients other doctors to provide
  • 01:47 --> 01:48an extra layer of support.
  • 01:49 --> 01:50So you know palliative care
  • 01:50 --> 01:52is one of these things.
  • 01:52 --> 01:55That is a little bit fuzzy.
  • 01:55 --> 01:58I think too many people.
  • 01:58 --> 02:01Some people think of
  • 02:01 --> 02:03palliative care as Hospice.
  • 02:03 --> 02:05Some people think of palliative
  • 02:05 --> 02:08care as pain management.
  • 02:08 --> 02:11Some people think of palliative
  • 02:11 --> 02:14care as death panels.
  • 02:14 --> 02:17And yet palliative care,
  • 02:17 --> 02:19the way that you've described
  • 02:19 --> 02:23it just seems more like a
  • 02:23 --> 02:27part of medical practice.
  • 02:27 --> 02:29So can you help?
  • 02:29 --> 02:31Kind of differentiate it
  • 02:31 --> 02:33from those other things?
  • 02:33 --> 02:35Absolutely. And I always emphasize
  • 02:35 --> 02:38that palliative care is really based
  • 02:38 --> 02:40on the needs of the patient and
  • 02:40 --> 02:42not the prognosis of the disease.
  • 02:42 --> 02:43It's appropriate at any age
  • 02:43 --> 02:45and any stage of an illness,
  • 02:45 --> 02:48and can be provided alongside
  • 02:48 --> 02:49curative treatments.
  • 02:49 --> 02:50Hospice is very different and
  • 02:50 --> 02:52there's a lot of overlap between
  • 02:52 --> 02:53palliative care and Hospice,
  • 02:53 --> 02:55but Hospice is really the benefit
  • 02:55 --> 02:58of that is additional support for
  • 02:58 --> 03:00patients who are living with a
  • 03:00 --> 03:02terminal illness and a prognosis
  • 03:02 --> 03:04many times of less than six months.
  • 03:04 --> 03:07So many of our patients in palliative care,
  • 03:07 --> 03:08especially in our clinic,
  • 03:08 --> 03:10are undergoing treatment for their
  • 03:10 --> 03:12cancer for different lengths of time,
  • 03:12 --> 03:15sometimes many years.
  • 03:15 --> 03:18And while we see our patients in our clinic,
  • 03:18 --> 03:20value of care can also be delivered in
  • 03:20 --> 03:22multiple other settings like hospitals,
  • 03:22 --> 03:24nursing homes or even patients homes.
  • 03:26 --> 03:28And so so it it seems to
  • 03:28 --> 03:30be different than Hospice.
  • 03:30 --> 03:32How is palliative care
  • 03:32 --> 03:34different from pain management?
  • 03:35 --> 03:37Yeah, pain management is certainly one
  • 03:37 --> 03:40of the aspects and domains of medical
  • 03:40 --> 03:42care that we cover in palliative care.
  • 03:42 --> 03:47There's so much to be said about
  • 03:47 --> 03:50physical symptoms that patients undergo
  • 03:50 --> 03:53and experience with their cancer,
  • 03:53 --> 03:57but also non physical symptoms like anxiety,
  • 03:57 --> 03:58depression, insomnia.
  • 03:58 --> 04:01These are all other things that we
  • 04:01 --> 04:04screen for when patients come to see us.
  • 04:04 --> 04:05Pain management is something that.
  • 04:05 --> 04:08There's a strong focus on in the
  • 04:08 --> 04:10training and we're really proud
  • 04:10 --> 04:12of how well we can treat pain,
  • 04:12 --> 04:14especially given what's going
  • 04:14 --> 04:16on in the media with opioids,
  • 04:16 --> 04:18and we know how to do this safely
  • 04:18 --> 04:20and we put in place many measures
  • 04:20 --> 04:23to to make sure that patients are
  • 04:23 --> 04:24getting access to pain treatment
  • 04:24 --> 04:26for their cancer in a safe way.
  • 04:27 --> 04:29But it seems like palliative care
  • 04:29 --> 04:30is more than pain management,
  • 04:30 --> 04:34and it's kind of that extra layer
  • 04:34 --> 04:36of support that you mentioned.
  • 04:36 --> 04:38And and and working with a
  • 04:38 --> 04:40team of doctors and nurses.
  • 04:40 --> 04:44And, you know, often chaplains and
  • 04:44 --> 04:46pharmacists and social workers
  • 04:46 --> 04:51and all kinds of people to really.
  • 04:51 --> 04:53Assess and and help with the needs of
  • 04:53 --> 04:55the patients in many different domains.
  • 04:55 --> 04:56Is that right?
  • 04:57 --> 04:58That's totally right,
  • 04:58 --> 05:00and he's palliative care is way more than
  • 05:00 --> 05:02just the pain management aspect of it.
  • 05:02 --> 05:05We we really do a lot for
  • 05:05 --> 05:07patients from the beginning,
  • 05:07 --> 05:09starting with basically getting to know
  • 05:09 --> 05:11who they are as people outside of their
  • 05:11 --> 05:13medical history and their medical records.
  • 05:13 --> 05:15So what things like what
  • 05:15 --> 05:17is important to them?
  • 05:17 --> 05:18Who is important to them?
  • 05:18 --> 05:19What are their goals?
  • 05:19 --> 05:21What are they looking forward to?
  • 05:21 --> 05:23Because we know that it's only
  • 05:23 --> 05:25once we learn about these vital
  • 05:25 --> 05:28aspects of people's lives that we
  • 05:28 --> 05:30can deliver the best care to them.
  • 05:30 --> 05:32We also know that multidisciplinary care
  • 05:32 --> 05:35has been shown to be more effective
  • 05:35 --> 05:37than when we provide care in silos.
  • 05:37 --> 05:40So when we work together in a
  • 05:40 --> 05:43team of people that have different
  • 05:43 --> 05:46expertise as we do and and many other
  • 05:46 --> 05:47fields have borrowed this as well,
  • 05:47 --> 05:50we find that we can uncover areas
  • 05:50 --> 05:52of distress that we may not have
  • 05:52 --> 05:54found if we just looked at it
  • 05:54 --> 05:56from one narrow point of view.
  • 05:57 --> 05:59And so you know Dimitri.
  • 05:59 --> 06:01Some may push back and say,
  • 06:01 --> 06:04you know you talk about palliative care.
  • 06:04 --> 06:06Is providing the best quality of care
  • 06:06 --> 06:08for patients in a multidisciplinary
  • 06:08 --> 06:11approach and getting to know the patient
  • 06:11 --> 06:13beyond their medical diagnosis to kind
  • 06:13 --> 06:15of take care of the whole patient.
  • 06:15 --> 06:17But some may push back and say, well,
  • 06:17 --> 06:19I thought that's what doctors do I.
  • 06:19 --> 06:21I thought that doctors you know are
  • 06:21 --> 06:24supposed to get to know me as a patient
  • 06:24 --> 06:26and and treat the whole patient.
  • 06:26 --> 06:28Why do I need palliative care?
  • 06:28 --> 06:31Why can't my doctor?
  • 06:31 --> 06:34Who's managing my illness?
  • 06:34 --> 06:35Whatever that illness may be,
  • 06:35 --> 06:37cancer or anything else?
  • 06:37 --> 06:40Do all of the things that you do.
  • 06:41 --> 06:42I'm glad you brought that up in Nice
  • 06:42 --> 06:44and one of the big challenges that we
  • 06:44 --> 06:46face is that there simply aren't enough
  • 06:46 --> 06:48palliative care specialists to care for
  • 06:48 --> 06:50all of patients with serious illness.
  • 06:50 --> 06:53One study in 2017 highlighted something
  • 06:53 --> 06:56pretty startling that there's estimated
  • 06:56 --> 06:591 oncologist for every 140 newly
  • 06:59 --> 07:01diagnosed cancer patients in the US.
  • 07:01 --> 07:03But there's only about 1 palliative
  • 07:03 --> 07:05care physician for every 1200
  • 07:05 --> 07:07patients with serious illness,
  • 07:07 --> 07:10so this projected growth also looking
  • 07:10 --> 07:13forward, is only about 1% for.
  • 07:13 --> 07:14Of palliative care specialists
  • 07:14 --> 07:16over the next 20 years,
  • 07:16 --> 07:18so one of the main things and one
  • 07:18 --> 07:20of the focuses that we have in our
  • 07:20 --> 07:23work is to teach these skills to our
  • 07:23 --> 07:25colleagues in other areas of medicine,
  • 07:25 --> 07:27like primary care,
  • 07:27 --> 07:28critical care,
  • 07:28 --> 07:29oncology and and other specialties
  • 07:29 --> 07:32so they can help us address all of
  • 07:32 --> 07:33these needs that we as a nation
  • 07:33 --> 07:35faced with serious illness and
  • 07:35 --> 07:37the palliative care specialists
  • 07:37 --> 07:39like us can be called in to help
  • 07:39 --> 07:41in situations which would benefit
  • 07:41 --> 07:44from a higher level of expertise.
  • 07:44 --> 07:45So like you said,
  • 07:45 --> 07:47you know I encourage everyone to
  • 07:47 --> 07:49ask whether palliative care is
  • 07:49 --> 07:51available to you and if it is,
  • 07:51 --> 07:52please take advantage of it.
  • 07:52 --> 07:54If if you aren't sure if it's available,
  • 07:54 --> 07:55then ask your medical team.
  • 07:56 --> 07:59And so, how do you know if you're a patient?
  • 07:59 --> 08:01I mean, because the way that
  • 08:01 --> 08:03you describe palliative care,
  • 08:03 --> 08:04it seems like everybody
  • 08:04 --> 08:05should want palliative care.
  • 08:05 --> 08:06Even if they were, you know,
  • 08:06 --> 08:09especially not at the end of
  • 08:09 --> 08:11a terminal illness, right?
  • 08:11 --> 08:13You mentioned that palliative care
  • 08:13 --> 08:16is something that can be used in
  • 08:16 --> 08:17addition to curative approaches,
  • 08:17 --> 08:19that it kind of takes care of the
  • 08:19 --> 08:21whole patient that it looks at what
  • 08:21 --> 08:23your needs are in various domains.
  • 08:23 --> 08:24It seems like that should
  • 08:24 --> 08:26be something that everybody.
  • 08:26 --> 08:30Should want as part of standard medical care.
  • 08:30 --> 08:33So how do you know when palliative
  • 08:33 --> 08:35care is something that you
  • 08:35 --> 08:38particularly need or this higher
  • 08:38 --> 08:40end palliative care where you need
  • 08:40 --> 08:42a palliative care specialist?
  • 08:44 --> 08:45I think that palliative care can
  • 08:45 --> 08:47be introduced to a patient at
  • 08:47 --> 08:49any stage of a serious illness.
  • 08:49 --> 08:50You know starting at diagnosis,
  • 08:50 --> 08:52but one of the challenges is trying
  • 08:52 --> 08:55to figure out when palliative
  • 08:55 --> 08:58care support is most helpful,
  • 08:58 --> 09:00and I think the studies that are
  • 09:00 --> 09:02being done now and and in the
  • 09:02 --> 09:04future are really kind of trying
  • 09:04 --> 09:06to figure out the optimal timing
  • 09:06 --> 09:08of referral to palliative care.
  • 09:08 --> 09:10So what I would say is that anyone
  • 09:10 --> 09:12is eligible for palliative care
  • 09:12 --> 09:14services with a serious illness.
  • 09:14 --> 09:18From diagnosis throughout any point,
  • 09:18 --> 09:19but what makes most sense,
  • 09:19 --> 09:21especially because it's an extra
  • 09:21 --> 09:22visit and it's an extra team.
  • 09:22 --> 09:25What makes the most sense is really
  • 09:25 --> 09:27when patients have symptoms that
  • 09:27 --> 09:30are burdensome that aren't being.
  • 09:30 --> 09:32That aren't being managed or have
  • 09:32 --> 09:34opportunities to manage better,
  • 09:34 --> 09:37and these symptoms are interfering
  • 09:37 --> 09:39with their day-to-day function
  • 09:39 --> 09:42and what they want to actually
  • 09:42 --> 09:43achieve with their goals.
  • 09:45 --> 09:47And so so talk a little bit more about
  • 09:47 --> 09:49the kinds of patients that you see and
  • 09:49 --> 09:51the kinds of symptoms that you treat.
  • 09:51 --> 09:53Because I can imagine that many
  • 09:53 --> 09:54people are listening to this
  • 09:54 --> 09:56kind of saying to themselves.
  • 09:56 --> 09:59Well, you know, it sounds really great,
  • 09:59 --> 10:01but I really don't know
  • 10:01 --> 10:04still what what it entails.
  • 10:04 --> 10:06I mean when you say symptoms,
  • 10:06 --> 10:08do you mean things like you know
  • 10:08 --> 10:10why I underwent chemotherapy,
  • 10:10 --> 10:11and my hair fell out,
  • 10:11 --> 10:14and that was really problematic for me?
  • 10:14 --> 10:16Or do you mean?
  • 10:16 --> 10:19Psychosocial distress where you know I
  • 10:19 --> 10:23was going through a cancer journey and
  • 10:23 --> 10:25found that some of the relationships
  • 10:25 --> 10:28that I thought I had were not as
  • 10:28 --> 10:30strong as they might have been.
  • 10:30 --> 10:34Or maybe it's financial distress is the
  • 10:34 --> 10:37thing that is most problematic to me.
  • 10:37 --> 10:40You talked a little bit about pain control.
  • 10:40 --> 10:43Tell us a little bit more about
  • 10:43 --> 10:45what exactly it is that you do.
  • 10:46 --> 10:49Yeah, so palliative care teams screen
  • 10:49 --> 10:52for common symptoms that are seen
  • 10:52 --> 10:54within the populations that they treat.
  • 10:54 --> 10:56So for example, at Smilow Cancer
  • 10:56 --> 10:59Hospital in our palliative care team,
  • 10:59 --> 11:01we assess patients for common
  • 11:01 --> 11:04symptoms like in addition to pain,
  • 11:04 --> 11:06nausea, fatigue, insomnia,
  • 11:06 --> 11:09mood issues like anxiety and
  • 11:09 --> 11:12depression and existential distress,
  • 11:12 --> 11:14and all of these could either be
  • 11:14 --> 11:16coming from the cancer itself.
  • 11:16 --> 11:19Or from the treatment that is
  • 11:19 --> 11:22being given for the cancer so.
  • 11:22 --> 11:25You know when we run into things like
  • 11:25 --> 11:26spiritual distress and and actually
  • 11:26 --> 11:29screen for them proactively and financial
  • 11:29 --> 11:31distress like you mentioned we are.
  • 11:31 --> 11:33If we find that the earlier that we
  • 11:33 --> 11:34uncover these sources of distress,
  • 11:34 --> 11:36the better we can provide support
  • 11:36 --> 11:38to address them and also make
  • 11:38 --> 11:40it much easier for patients to
  • 11:40 --> 11:42get through their treatments,
  • 11:42 --> 11:43which is our optimal goal.
  • 11:44 --> 11:47So, you know, I can imagine that.
  • 11:47 --> 11:50Well, let me ask you this.
  • 11:50 --> 11:53In in, in cancer centers,
  • 11:53 --> 11:56it seems to me that not all
  • 11:56 --> 11:58cancer patients would be offered.
  • 11:58 --> 12:01Palliative care is particularly given.
  • 12:01 --> 12:05The paucity of of availability of palliative
  • 12:05 --> 12:08care specialists as you mentioned.
  • 12:08 --> 12:12So is that something that?
  • 12:12 --> 12:14Should be routine that every
  • 12:14 --> 12:16cancer patient should at least be
  • 12:16 --> 12:18introduced to palliative care.
  • 12:18 --> 12:22Or is it something where?
  • 12:22 --> 12:25You you would recommend that only
  • 12:25 --> 12:29when a primary care team or medical
  • 12:29 --> 12:33team cannot manage particular issues.
  • 12:33 --> 12:34Palliative care is called in.
  • 12:35 --> 12:36An ideal world.
  • 12:36 --> 12:39I really wish that every cancer patient
  • 12:39 --> 12:41could be introduced to palliative care
  • 12:41 --> 12:44team and that would be really wonderful.
  • 12:44 --> 12:45Model of care and that's something.
  • 12:45 --> 12:48Maybe we can strive towards at
  • 12:48 --> 12:50least screening for the patients
  • 12:50 --> 12:52that would be highest would benefit
  • 12:52 --> 12:54the most from palliative care.
  • 12:54 --> 12:57What we find is that we just end
  • 12:57 --> 12:59up working together with the
  • 12:59 --> 13:01patient's primary medical team
  • 13:01 --> 13:04to figure out what issues are.
  • 13:04 --> 13:06Well, sort of fall within.
  • 13:06 --> 13:08The primary palliative care skill
  • 13:08 --> 13:10center or skills that everyone in
  • 13:10 --> 13:12medicine should have and which ones
  • 13:12 --> 13:14require a little bit more expertise
  • 13:14 --> 13:17and and those are the patients that
  • 13:17 --> 13:19we really love to to be involved with.
  • 13:19 --> 13:19Because you know,
  • 13:19 --> 13:21you know we were so proud of the
  • 13:21 --> 13:23training that we have and also the
  • 13:23 --> 13:24interdisciplinary team that we have
  • 13:24 --> 13:26to address. Much of these things.
  • 13:26 --> 13:28You know what?
  • 13:28 --> 13:30As you talk about palliative care
  • 13:30 --> 13:32and all of the things that you do.
  • 13:32 --> 13:35I think about people who may be
  • 13:35 --> 13:37getting care out in the community
  • 13:37 --> 13:40where there are not these resources
  • 13:40 --> 13:42and after we come back from taking
  • 13:42 --> 13:45a brief break for a medical minute,
  • 13:45 --> 13:47I want to talk about how those
  • 13:47 --> 13:49people can get kind of palliative
  • 13:49 --> 13:51care where they live as well.
  • 13:52 --> 13:54Funding for Yale Cancer Answers comes
  • 13:54 --> 13:57from Smilow Cancer Hospital hosting
  • 13:57 --> 13:59an event in honor of colorectal
  • 13:59 --> 14:01Cancer Awareness Month March 16th.
  • 14:01 --> 14:04Register at yalecancercenter.org
  • 14:09 --> 14:11There are over 16.9 million
  • 14:11 --> 14:14cancer survivors in the US and
  • 14:14 --> 14:16over 240,000 here in Connecticut.
  • 14:16 --> 14:17Completing treatment for cancer
  • 14:17 --> 14:20is a very exciting milestone,
  • 14:20 --> 14:22but cancer and its treatment can
  • 14:22 --> 14:24be a life changing experience.
  • 14:24 --> 14:26The return to normal activities
  • 14:26 --> 14:28and relationships may be difficult
  • 14:28 --> 14:30and cancer survivors may face other
  • 14:30 --> 14:32long term side effects of cancer,
  • 14:32 --> 14:34including heart problems,
  • 14:34 --> 14:34osteoporosis,
  • 14:34 --> 14:37fertility issues and an increased
  • 14:37 --> 14:39risk of second cancers.
  • 14:39 --> 14:42Resources for cancer survivors are
  • 14:42 --> 14:44available at federally designated
  • 14:44 --> 14:45Comprehensive cancer centers
  • 14:45 --> 14:47such as the Yale Cancer Center
  • 14:47 --> 14:49and Smilow Cancer Hospital.
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  • 14:51 --> 14:53and focused on healthy living,
  • 14:53 --> 14:56the Smilow Cancer Hospital Survivorship
  • 14:56 --> 14:58clinic focuses on providing guidance
  • 14:58 --> 15:00and direction to empower survivors to
  • 15:00 --> 15:02take steps to maximize their health,
  • 15:02 --> 15:05quality of life and longevity.
  • 15:05 --> 15:07More information is available
  • 15:07 --> 15:09at yalecancercenter.org. You're
  • 15:09 --> 15:10listening to Connecticut
  • 15:10 --> 15:11Public Radio.
  • 15:12 --> 15:14Welcome back to Yale Cancer Answers.
  • 15:14 --> 15:16This is doctor Anees Chagpar and
  • 15:16 --> 15:19I'm joined tonight by my guest
  • 15:19 --> 15:20Doctor Dmitry Kozhevnikov.
  • 15:20 --> 15:22We are learning about the field of
  • 15:22 --> 15:24palliative care in the outpatient
  • 15:24 --> 15:26setting and right before the break
  • 15:26 --> 15:30you were talking a
  • 15:30 --> 15:33lot about palliative care and the fact
  • 15:33 --> 15:36that there is a nationwide paucity of
  • 15:36 --> 15:39palliative care specialists that really
  • 15:39 --> 15:42palliative care in the ideal world.
  • 15:42 --> 15:44Would be introduced to every patient
  • 15:44 --> 15:47who had a critical illness and that
  • 15:47 --> 15:50this really is much more than simply
  • 15:50 --> 15:53Hospice or pain control in this
  • 15:53 --> 15:56country we have people being diagnosed
  • 15:56 --> 16:00every day in every center in America,
  • 16:00 --> 16:02and some of those are blessed
  • 16:02 --> 16:04to be large academic centers.
  • 16:04 --> 16:07But there are people who are being
  • 16:07 --> 16:09diagnosed in smaller centres and yet
  • 16:09 --> 16:13they may have some of the same symptoms.
  • 16:13 --> 16:16Issues and other crises of other
  • 16:16 --> 16:17cancer patients.
  • 16:17 --> 16:19In some of these smaller centers
  • 16:19 --> 16:22they will try to piece together a
  • 16:22 --> 16:24palliative care team that's not
  • 16:24 --> 16:27really called palliative care.
  • 16:27 --> 16:30They might bring in a pain management
  • 16:30 --> 16:33specialist from anesthesia to deal with pain.
  • 16:33 --> 16:36They might have a social worker
  • 16:36 --> 16:38to deal with financial issues
  • 16:38 --> 16:40and psychosocial distress.
  • 16:40 --> 16:43They may have a chaplain to deal with.
  • 16:43 --> 16:47Existential crises and and this.
  • 16:47 --> 16:50Issue of of spirituality that
  • 16:50 --> 16:53some cancer patients face.
  • 16:53 --> 16:55What are your thoughts on on that?
  • 16:55 --> 16:57It is that helpful for patients
  • 16:58 --> 17:00you know. Palliative care has been one of
  • 17:00 --> 17:01the fastest growing fields in medicine,
  • 17:01 --> 17:04as so many patients, clinicians,
  • 17:04 --> 17:07payers and policymakers are really
  • 17:07 --> 17:09recognized its potential to improve quality
  • 17:09 --> 17:12of care for patients with serious illness.
  • 17:12 --> 17:14Unfortunately, we're still at a place
  • 17:14 --> 17:16where there are areas in the country that
  • 17:16 --> 17:18don't have access to palliative care,
  • 17:18 --> 17:20and I think that's where advocacy
  • 17:20 --> 17:22comes in within our field,
  • 17:22 --> 17:23especially with recent legislation.
  • 17:23 --> 17:26That is being worked on to attack this
  • 17:26 --> 17:29issue from multiple angles, number one,
  • 17:29 --> 17:31increase the funding for education
  • 17:31 --> 17:33of palliative care specialists.
  • 17:33 --> 17:37Also, not only product care specialists
  • 17:37 --> 17:39but also general primary care,
  • 17:39 --> 17:42palliative skills that any clinician should
  • 17:42 --> 17:47have and #2 increase ways that we can.
  • 17:47 --> 17:50You know really promote health care system
  • 17:50 --> 17:54that rewards us for the quality of care.
  • 17:54 --> 17:57That we can give to our patients
  • 17:57 --> 17:59rather than rewarding us for the
  • 17:59 --> 18:01number of patients that we see.
  • 18:01 --> 18:03And so you know, despite this growth,
  • 18:03 --> 18:04you know.
  • 18:04 --> 18:04Unfortunately,
  • 18:04 --> 18:06there are still barriers to accessing
  • 18:06 --> 18:08palliative care for millions of patients,
  • 18:08 --> 18:11and this really varies by hospital
  • 18:11 --> 18:13size and geography and staffing.
  • 18:13 --> 18:15But what I would say is that
  • 18:15 --> 18:16the interdisciplinary approach
  • 18:16 --> 18:16that you mentioned,
  • 18:16 --> 18:19even if there isn't a official palliative
  • 18:19 --> 18:22care team that's been well developed yet.
  • 18:22 --> 18:23That's a start,
  • 18:23 --> 18:24and I think that.
  • 18:24 --> 18:26That's a really step in the right direction.
  • 18:26 --> 18:29When do you think patients who may be
  • 18:29 --> 18:33at a smaller center and maybe getting
  • 18:33 --> 18:36kind of this piecemeal palliative
  • 18:36 --> 18:40care ought to ask for referral to
  • 18:40 --> 18:44a larger Center for a particular
  • 18:44 --> 18:46palliative care consultation?
  • 18:46 --> 18:47Is that something that people
  • 18:47 --> 18:49should be thinking about,
  • 18:49 --> 18:52or is that not really something that is done
  • 18:53 --> 18:55well? I can't speak for.
  • 18:55 --> 18:57All the programs across the country.
  • 18:57 --> 18:59But what I can say is that it's
  • 18:59 --> 19:02quite challenging for a program to
  • 19:02 --> 19:04take on patients from outside the
  • 19:04 --> 19:06system unless the patient's already
  • 19:06 --> 19:09getting care within that system.
  • 19:09 --> 19:11So I think that comes down to
  • 19:11 --> 19:13a continuity of care issue.
  • 19:13 --> 19:16It's so helpful for us to work so closely
  • 19:16 --> 19:18with our colleagues here and oncology,
  • 19:18 --> 19:20and the outpatient setting and then
  • 19:20 --> 19:23all of the other specialties in the
  • 19:23 --> 19:25hospital because we all just communicate.
  • 19:25 --> 19:26Very smoothly,
  • 19:26 --> 19:29we all know the patient and it really
  • 19:29 --> 19:31promotes this patient centered care.
  • 19:31 --> 19:34I think the best way to approach that
  • 19:34 --> 19:37issue is really to for physicians,
  • 19:37 --> 19:39nurses, nurse practitioners,
  • 19:39 --> 19:42and others within each system
  • 19:42 --> 19:44health care system.
  • 19:44 --> 19:47Local system to really advocate for this
  • 19:47 --> 19:50kind of support for their patients,
  • 19:50 --> 19:53and that that might really make the
  • 19:53 --> 19:55difference over the long term and leadership.
  • 19:55 --> 19:58Putting resources towards dedicated
  • 19:58 --> 20:01palliative care teams that can,
  • 20:01 --> 20:01you know,
  • 20:01 --> 20:02add an extra layer of support
  • 20:03 --> 20:07and you know to that end.
  • 20:07 --> 20:09All of the health care administrators
  • 20:09 --> 20:12who are are listening to us are thinking,
  • 20:12 --> 20:14yes, that's yet another expense.
  • 20:14 --> 20:20In an already very tight healthcare system.
  • 20:20 --> 20:23So talk to us a little bit more
  • 20:23 --> 20:26about evidence based outcomes of
  • 20:26 --> 20:29palliative care services and whether
  • 20:29 --> 20:34there is in fact data that supports.
  • 20:34 --> 20:35Valuative care services.
  • 20:35 --> 20:38As improving quality of care,
  • 20:38 --> 20:41perhaps longevity does it.
  • 20:41 --> 20:45And and and even further,
  • 20:45 --> 20:48is there any evidence for
  • 20:48 --> 20:49its cost effectiveness?
  • 20:50 --> 20:51Yeah, we have some fascinating
  • 20:51 --> 20:53evidence to support the early
  • 20:53 --> 20:54involvement of palliative care,
  • 20:54 --> 20:56particularly in oncology patients,
  • 20:56 --> 20:59but in other diseases as well,
  • 20:59 --> 21:01and one of the pivotal studies in
  • 21:01 --> 21:03our field was published in the New
  • 21:03 --> 21:05England Journal of Medicine in 2010.
  • 21:05 --> 21:07And this was led by our colleagues at mass,
  • 21:07 --> 21:10general Doctor Temel and her team,
  • 21:10 --> 21:11and the researchers recruited
  • 21:11 --> 21:13a group of patients with lung
  • 21:13 --> 21:15cancer who volunteered to be
  • 21:15 --> 21:17randomized to two different groups.
  • 21:17 --> 21:19One group received standard oncology
  • 21:19 --> 21:22care and the other group that comparison
  • 21:22 --> 21:25group received standard oncology care
  • 21:25 --> 21:27plus early palliative care and what
  • 21:27 --> 21:28they found was sort of incredible.
  • 21:28 --> 21:31The patients in the early palliative
  • 21:31 --> 21:33care group had better symptom control.
  • 21:33 --> 21:35They had better mood.
  • 21:35 --> 21:37Better quality of life scores and
  • 21:37 --> 21:40they had less intensive care at
  • 21:40 --> 21:42the end of life and they also lived
  • 21:42 --> 21:44on average two months longer than
  • 21:44 --> 21:47the patients who did not have any
  • 21:47 --> 21:48exposure to palliative care.
  • 21:48 --> 21:51And this was really a huge a-ha moment
  • 21:51 --> 21:54for our field when we really could
  • 21:54 --> 21:57demonstrate the specific benefits
  • 21:57 --> 21:58of palliative care involvement
  • 21:58 --> 22:00when it comes to things that really
  • 22:00 --> 22:00matter to patients
  • 22:01 --> 22:04and so with that less intense use
  • 22:04 --> 22:06of resources at the end of life.
  • 22:06 --> 22:09Did that study or any other study demonstrate
  • 22:09 --> 22:12cost effectiveness of palliative care?
  • 22:12 --> 22:15In other words, was there an offset in
  • 22:15 --> 22:19terms of the cost of hiring palliative
  • 22:19 --> 22:22care specialists versus the cost
  • 22:22 --> 22:25of treatments at the end of life,
  • 22:25 --> 22:27which may not have been helpful?
  • 22:28 --> 22:30Yeah, there's some really strong
  • 22:30 --> 22:33data to support the the support the
  • 22:33 --> 22:35resources of having a palliative
  • 22:35 --> 22:37care team in the hospital.
  • 22:37 --> 22:40Which has shown in multiple different
  • 22:40 --> 22:41studies to minimize healthcare
  • 22:42 --> 22:44utilization at the end of life,
  • 22:44 --> 22:46which saves the system money.
  • 22:46 --> 22:49But that's not really what we focus on,
  • 22:49 --> 22:50and that's that's not the
  • 22:50 --> 22:51most important part of this.
  • 22:51 --> 22:52The the real important part
  • 22:52 --> 22:55of this is that we align,
  • 22:55 --> 22:57we align what's important to the patients
  • 22:57 --> 22:59with what the care that they receive is.
  • 22:59 --> 23:01So, for example,
  • 23:01 --> 23:05patients who want to spend whatever time they
  • 23:05 --> 23:07have at home and not be in the hospital.
  • 23:07 --> 23:08Back and forth.
  • 23:08 --> 23:09Yeah, you know which obviously
  • 23:09 --> 23:11is a burden to a lot of people.
  • 23:11 --> 23:14Those patients receive care
  • 23:14 --> 23:16that is aligned with that,
  • 23:16 --> 23:19and that's that's really our motivation
  • 23:19 --> 23:21and our daily focus and rewarding
  • 23:21 --> 23:23nature of this of this field.
  • 23:24 --> 23:26Yeah no, I get that completely Dimitri.
  • 23:26 --> 23:27But the healthcare administrators
  • 23:27 --> 23:30who are looking at hiring palliative
  • 23:30 --> 23:32care specialists and are thinking
  • 23:32 --> 23:35about the additional cost of doing
  • 23:35 --> 23:38so are often also thinking about.
  • 23:38 --> 23:39It's cost effectiveness,
  • 23:39 --> 23:42so it's nice when you can provide
  • 23:42 --> 23:45evidence that not only does palliative
  • 23:45 --> 23:48care align with patients interests,
  • 23:48 --> 23:51but it also aligns with the
  • 23:51 --> 23:53healthcare systems interests in
  • 23:53 --> 23:56terms of reducing health care costs,
  • 23:56 --> 23:59while at the same time improving quality.
  • 23:59 --> 24:03So the next question I have is this.
  • 24:03 --> 24:06You know you did a fellowship in
  • 24:06 --> 24:09palliative care in order for.
  • 24:09 --> 24:11A health care system to provide
  • 24:11 --> 24:13palliative care services.
  • 24:13 --> 24:15Do they need fellowship trained
  • 24:15 --> 24:17palliative care specialists like
  • 24:17 --> 24:21you or is it possible for them to
  • 24:21 --> 24:24train up their existing workforce?
  • 24:24 --> 24:27Whether it's nurses or physicians
  • 24:27 --> 24:30to provide them some palliative
  • 24:30 --> 24:33care training that so that they may
  • 24:33 --> 24:37be able to provide these kinds of
  • 24:37 --> 24:39resources to their patients without.
  • 24:39 --> 24:40Uhm,
  • 24:40 --> 24:42going through a fellowship training
  • 24:42 --> 24:45or hiring somebody who who has
  • 24:45 --> 24:47fellowship training in palliative care.
  • 24:49 --> 24:51Yeah, the the standard of care
  • 24:51 --> 24:54really is to have board certified
  • 24:54 --> 24:58palliative care physicians on the team.
  • 24:58 --> 24:59But that being said,
  • 24:59 --> 25:02there are many ways that health care
  • 25:02 --> 25:05systems can invest in their current
  • 25:05 --> 25:08staff by providing training for,
  • 25:08 --> 25:10for example, the nurses in the
  • 25:10 --> 25:12hospital taking care of patients on
  • 25:12 --> 25:15different in different settings and
  • 25:15 --> 25:17whether it's in middle critical care
  • 25:17 --> 25:20unit or on the normal regular floor.
  • 25:20 --> 25:22Investing in them to provide
  • 25:22 --> 25:25training on the primary palliative
  • 25:25 --> 25:28care skills that could really help
  • 25:28 --> 25:31them provide aligned care and in
  • 25:31 --> 25:33really patient centered care at all
  • 25:33 --> 25:35levels and all stages of disease.
  • 25:35 --> 25:37And so obviously we would
  • 25:37 --> 25:40all love to have you know,
  • 25:40 --> 25:41board certified physicians
  • 25:41 --> 25:44on staff and but you know,
  • 25:44 --> 25:45that's really been a challenge
  • 25:45 --> 25:47and I think it's going to be
  • 25:47 --> 25:48a challenge looking forward.
  • 25:48 --> 25:50I think we can address that through.
  • 25:50 --> 25:51And investing in other ways,
  • 25:52 --> 25:54and so you know you.
  • 25:54 --> 25:56You mentioned that palliative care can
  • 25:56 --> 25:58be offered in a variety of settings,
  • 25:58 --> 26:01so certainly in the critical care units
  • 26:01 --> 26:03on the oncology units in the hospital.
  • 26:03 --> 26:06But your main area is is
  • 26:06 --> 26:08in the outpatient clinic.
  • 26:08 --> 26:09Is that right?
  • 26:09 --> 26:12And can you tell us a little bit more
  • 26:12 --> 26:15about how palliative care differs from
  • 26:15 --> 26:18inpatient services to outpatient?
  • 26:20 --> 26:22So I'm I'm I'm lucky enough to actually
  • 26:22 --> 26:25have a few weeks a year where I'm
  • 26:25 --> 26:27working in the hospital with our
  • 26:27 --> 26:29inpatient palliative care team as well,
  • 26:29 --> 26:31so I'm able to see patients both in
  • 26:31 --> 26:34the clinic setting and then also help
  • 26:34 --> 26:36them when they're in the hospital
  • 26:36 --> 26:38with an acute issue and that there
  • 26:38 --> 26:41is a lot of overlap between the work
  • 26:41 --> 26:43that we do in the clinic and the
  • 26:43 --> 26:45work that we do in the hospital.
  • 26:45 --> 26:47One of the beautiful things is
  • 26:47 --> 26:49that when one of our patients,
  • 26:49 --> 26:51you know we know and and they
  • 26:51 --> 26:53know us has an issue and they're
  • 26:53 --> 26:54admitted to the hospital,
  • 26:54 --> 26:57they have a team that already knows them
  • 26:57 --> 26:59and has the developed a relationship with
  • 26:59 --> 27:01them to comment and check in on them.
  • 27:01 --> 27:03See what's going on.
  • 27:03 --> 27:06See if there unaddressed symptoms or
  • 27:06 --> 27:08other aspects of their palliative
  • 27:08 --> 27:11care needs that we could add onto.
  • 27:11 --> 27:13So what the primary medical team is doing?
  • 27:13 --> 27:15The main difference is really
  • 27:15 --> 27:16between the two settings.
  • 27:16 --> 27:20Is that obviously in the outpatient setting?
  • 27:20 --> 27:22We're able to develop relationships
  • 27:22 --> 27:24over longer periods of time,
  • 27:24 --> 27:25and and that really is is
  • 27:25 --> 27:26very rewarding to me.
  • 27:27 --> 27:30And presumably the other issue is
  • 27:30 --> 27:32that going back to something that
  • 27:32 --> 27:34you mentioned before the break,
  • 27:34 --> 27:36you know not all of these
  • 27:36 --> 27:38patients that you see,
  • 27:38 --> 27:40particularly in the outpatient setting,
  • 27:40 --> 27:43are quote at the end of life.
  • 27:43 --> 27:46So some of these may be, you know,
  • 27:46 --> 27:48dealing with symptoms that they may
  • 27:48 --> 27:51have developed a undergoing active
  • 27:51 --> 27:53treatment for curative intent,
  • 27:53 --> 27:54and you're you're kind of
  • 27:54 --> 27:56seeing them through that process
  • 27:56 --> 27:58where they're able to come to.
  • 27:58 --> 28:01An outpatient clinic and avail
  • 28:01 --> 28:02themselves of your service.
  • 28:02 --> 28:03Is that right?
  • 28:04 --> 28:05Yeah, so many of our patients are
  • 28:05 --> 28:08with us for years and years and they
  • 28:08 --> 28:09are living with serious illness.
  • 28:09 --> 28:12For example, cancers like breast
  • 28:12 --> 28:14cancer with which have which have
  • 28:14 --> 28:16amazing treatments that are coming
  • 28:16 --> 28:18out over the last few years,
  • 28:18 --> 28:19really impacting patients lives
  • 28:19 --> 28:21and allowing them to live longer.
  • 28:21 --> 28:25And other hematologic cancers, for example,
  • 28:25 --> 28:27are are more like chronic illnesses
  • 28:27 --> 28:29that people live with for a long time, so.
  • 28:29 --> 28:31We've really found our niche in
  • 28:31 --> 28:32helping those patients live better.
  • 28:33 --> 28:34Doctor Dmitry Kozhevnikov
  • 28:34 --> 28:36is an assistant professor at
  • 28:36 --> 28:38the Yale School of Medicine.
  • 28:38 --> 28:40If you have questions,
  • 28:40 --> 28:42the addresses cancer answers at
  • 28:42 --> 28:44yale.edu and past editions of the
  • 28:44 --> 28:47program are available in audio and
  • 28:47 --> 28:48written form at yalecancercenter.org.
  • 28:48 --> 28:51We hope you'll join us next week to
  • 28:51 --> 28:53learn more about the fight against
  • 28:53 --> 28:54cancer here on Connecticut Public
  • 28:54 --> 28:56radio funding for Yale Cancer Answers
  • 28:56 --> 29:00is provided by Smilow Cancer Hospital.