American Headache Society
The American Headache Society (AHS) is a society of health care providers involved in the research and treatment of headaches. Their aim is to share information on the diagnosis, symptoms, and treatments of headaches to create a health care system better equipped to deal with headache problems. The AHS organizes conferences and symposia to facilitate the exchange of ideas, and it publishes the journal Headache.
National Headache Foundation
The National Headache Foundation (NHF) is involved with increasing awareness and education about headaches to patients and health care providers. They also house an extensive library of information on headaches and migraines, which is freely available to the public. They provide a list of providers who specialize in the field of headache medicine.
American Migraine Foundation
The American Migraine Foundation (AMF) is an organization dedicated to the research and awareness of migraine. The AMF was originally founded by the AHS with the goal of focusing specifically on migraine, which is distinct in research and (sometimes) treatment from cluster and tension-type headaches. One of their main goals is to address the lack of funding for migraine, a disabling disease that affects more than 36 million Americans.
Migraine Research Foundation
The Migraine Research Foundation (MRF) is devoted to raising money for migraine research as well as raising awareness about the symptoms and sufferers of migraines. Their fundraising focuses on individual people who raise money in their community, helping to bridge the gap between public funding and research need. The MRF has a list of headache specialists to connect patients with those capable of helping them.
Association of Migraine Disorders
The Association of Migraine Disorders (AMD) is an organization involved with migraine advocacy and research that strives to define the key differences between typical headaches and migraines. The AMD is unique in that its core beliefs are that migraines affect much of the nervous system, going past the traditional pain pathways and impacting normal brain pathways in patients with migraines. The organization is also involved with educating health care providers, trying to recruit and educate the next generation of headache specialists through student initiative programs.
American Migraine Prevalence and Prevention (AMPP) study
The American Migraine Prevalence and Prevention (AMPP) study was a five-year longitudinal, or over time, study that was designed to capture the number of migraine sufferers, known as prevalence, and the financial and time costs associated with migraine. The study describes suffers of transformed migraine, a condition characterized by patients who formally had episodic migraine, which transitioned to more frequent migraine attacks. These patients reported more doctor visits than traditional migraine patients, as well as significantly decreased productivity and absenteeism and a 341% increase in treatment costs per year over traditional migraine patients.
Alliance for Headache Disorders Advocacy
The Alliance of Headache Disorders Advocacy (AHDA) fights for the health of patients dealing with headache disorders, including migraine, tension-type headaches, and cluster headaches. It comprises other nonprofits, including the AHS, MRF, NHF, and AMD (mentioned above), that all advocate for improved patient and provider education, as well as increasing funding for headache disorders.
Migraine.com is a site designed to provide information for migraine patients and those who think they may have the condition. It outlines symptoms, treatment options, and provides resources for dealing with migraine symptoms. It also provides a community of migraine patients who can discuss their illness. The website also includes articles written by health care providers regarding new treatment options or descriptions of existing medications and therapies.
Coalition for Headache and Migraine Patients
The Coalition for Headache and Migraine Patients (CHAMP) is designed to provide support to patients with headache-related disorders, including migraine and cluster headaches. They provide information about the conditions and about other foundations and organizations that are associated with headache and migraine treatment. CHAMP's goal is to identify unmet needs and work to help patients and their health care providers meet those needs.
Miles for Migraine
Miles for Migraine is an organization dedicated to raising money and awareness with the goal of improving the lives of migraine patients and their families. They organize two-mile walks as well as 5k and 10k races to raise money for migraine research and to help alleviate the social stigma associated with migraine. They believe they can improve patient outlook and health by allowing people with migraine to actively help in their own treatment by raising money.
Migraine Action is the United Kingdom's leading support charity for migraine sufferers. Their goal is to educate patients and providers on potential treatments, as well as work with employers to educate them and reduce migraine-based loss of productivity. They promote the exchange of ideas between migraine sufferers, in order to create a support system of not only health care providers and family, but also of other people who share common experiences.
Migraine Again is a patient-run site that talks about living and coping with not only the physical symptoms of migraine, but the emotional stress they can cause. It connects patients from different walks of life by shared migraine experience, and discusses how best to handle life's challenges in the face of migraines. It also has a service that connects patients with doctors in their local area.
The Migraine World Summit
The Migraine World Summit is a convention in which 31 leading migraine experts, doctors, and specialists discuss latest treatment options and developments in migraine study. Past conferences are available online to watch, with some of the proceeds going to help migraine research and advocacy.
The Migraine Diva is a blog written by Jaime Sanders, a long-time migraine sufferer, who chronicles her own struggles and treatment experiences. She also writes about potential new treatments, and has a focus on non-medicinal pain relief as a first-line defense in her struggles with migraine.
Golden Graine is a blog by Katie Golden, a long-time migraine sufferer and writer for Migraine.com. She is a member of many different migraine societies, and talks extensively about her methods of dealing with migraines, and what she is doing to help herself and others deal with the debilitating disease. She also discusses new treatment options and her opinions on them.
Migraine warrior is a blog written by Michelle Tracy, a patient advocate and migraine patient, who chronicles her life with chronic migraine and the various treatments she has tried, as well as the foundations and initiatives she has been a part of.